Neurological Disorder »

dazed

Huge head ache yesterday and I still have it. But it's but it's not as bad as yesterday. I was tired when watching a an indie film on Hugo Chavez.. I wanted to see it since Wednesday but when I was there I suddenly felt like a switch was on. I didn't know where I was and how I got there. I heard the movie but it was distant echoes. I don't know what it was I was just lost. The film was really good and I know I liked it because I am remembering how good it was and full of important ideas; at the same time I had no clue what was going on. As I am typing I know none of this makes sense, I just hope it isn't anything serious. 

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Help Found

 Raise The Roof 1 I'm so relieved and feeling hopeful. I just found an Epliepsy Center close by. I'm waiting until 8 so I can call and see if they can help me. I just need and EEG and help buying my medications. I've been praying about this all weekend. This morning it was like God opened the door for me. Thank you Jesus!

 

Neurological Disorder »

Spinning

I've been having recurring vertigo attacks since November 2006. After lots and lots of doctor visits, I was diagnosed with atypical BPPV. In September I finally used the Epley to try to reposition the little rocks and I haven't had another vertigo attack since. I still feel off-balance sometimes, nauseous, and fuzzy-headed. I'm doing VRTs to get rid of those things but so far it hasn't helped much. The only VRT that seems to help is treadmill walking +reading but I'm bad about doing it every day… I feel nauseous and can't make myself go to the gym. Trying though!

 Have an MRI scheduled next week along with an upper endoscopy because I'm vit B deficient. 

 Fun fun!

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RBC

RBC is a blood particale. Its allso called by "Red Blood Cell" Number of RBC tell the condition of Anemia.

Anemia is the most common disorder of the blood. Anemia can be classified in a variety of ways, based on the morphology of RBCs, underlying etiologic mechanisms, and discernible clinical spectra, to mention a few.Anemia refers to a deficiency of red blood cells and/or hemoglobin.

Neurological Disorder »

tired

today i collapsed AGAIN at home thank god my brother rushed me to hostpital im bak at home now but im still a bit sleepy though

Neurological Disorder »

Some healing tips for CFS

To overcome Chronic Fatigue Syndrome, don't eat anything out of packages, eat real stuff from nature, and make vegetable juices (carrot-celery for starters). Stop caring for others and care for yourSelf. Stop doing things that you don't have energy to do. Make life simpler. You might try BarleyLife from AIM For Life (or cheaper alternative barleygrass juice powder and powdered dulse from Pacifical Botanicals www.pacificbotanics.com is a good substitute to boost thyroid function). Know that even if what you are going through doesn't show up on a test (and it probably won't), that you must continue to seek answers. Learn to live life for the little moments 
and stop striving to be perfect.  Find a whole food supplement 
such as Dr. Schulze Superfoods (best price is on ebay). Treat systemic candidiasis with garlic or ThreeLac or other things you find to treat it with. Observe the effects of what you do, eat, and drink, 
and learn to listen to your body.
Be self-disciplined and log what you do that makes you feel better and what makes you feel worse. Don't exercise if it makes you feel worse. Treat your adrenal glands - with an adrenal glandular, ginseng, or other adrenal boosters, if your research points in this direction (and the medical advice you have sought). I could tell you more, but this is a start. 

Neurological Disorder »

My Son

My son has cerebral palsy and  its a hard job being a single mother of a disabled child.  He can't walk, is still in diapers, and has limited mobility of his upper body.  He does feed himself, but requires assistance for almost everything else.  He also has behavior problems to go with the cerebral palsy.

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Another Day In Bed Story

I wrote this post on my Fighting Fatigue blog a few weeks ago and I wanted to post it here so that hopefully people will understand better what this illness is like for us suffering.

You can also read the post at this link by clicking here.

I still am not feeling well today. The exhaustion is overwhelming. I had to go to the store for some things and as soon as I returned home, I fell asleep. So from 11:30 a.m. - 4:30 p.m. I slept. I hate missing out on my days and sleeping them away. My body doesn’t really give me any other choice though.

My son was feeling better, so he was at grandma’s house today. I haven’t been able to exercise because the exhaustion has been too bad. I keep having these hot flashes, then cold chills, and I haven’t decided yet if it is from some bug or virus, or just my hormones going crazy again. Sometimes it’s hard to tell the difference.

It’s amazing how some people react to Chronic Fatigue Syndrome. They think that we should just be able to “suck it up” and “push through being tired”. I hate the word tired. It doesn’t even begin to describe what I feel most of the time. Our disease is just like other chronic illnesses. We have to do what we have to do in order to survive.

My all time favorite thing that people say is, “You get exhausted because you THINK you will. If you just believe that you won’t get exhausted, then it won’t happen. You set yourself up for failure”. THIS IS SUCH BULL!! Would you tell a diabetic that they should not take their insulin and watch their diet because if they believe they can be well, they can? Or would you tell someone who has heart disease not to take their cholesterol medication, high blood pressure medication and watch their diet because if they just believe they can be well they don’t need any of these things? With Chronic Fatigue and Fibromyalgia patients, we need the rest. We have to watch our schedules. This is our insulin and high blood pressure medication.

I find that the older I am getting the more bad days I am having - and I am only 38. God, it scares me to think about what I am going to feel like at 50. I’ll probably feel like I am 70.

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CFS Flare

I am having a CFS flare today.  I didn't sleep well last night because I was worried about my son starting Kindergarten today and of course, as a mother to an only child, I spent a lot of that time crying.

 Now I feel like crap and my symptoms are acting up big time.  Warning to those out there with Chronic Fatigue Syndrome:  beware of any kind of stress at all.  It's just so damaging for us.

Fighting Fatigue

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I do not have Chronic Fatigue Syndrome

Went to the doctor today and he said I do not have chronic fatigue syndrome. He said my fatigue and lack of energy is most likely due to diabetes. Though based on his response, he seems to think CFS does not exist.

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