Neurological Disorder » Chronic Fatigue Syndrome »

October 7, 2007

Some healing tips for CFS

October 07th 2007 Posted to Chronic Fatigue Syndrome

To overcome Chronic Fatigue Syndrome, don't eat anything out of packages, eat real stuff from nature, and make vegetable juices (carrot-celery for starters). Stop caring for others and care for yourSelf. Stop doing things that you don't have energy to do. Make life simpler. You might try BarleyLife from AIM For Life (or cheaper alternative barleygrass juice powder and powdered dulse from Pacifical Botanicals www.pacificbotanics.com is a good substitute to boost thyroid function). Know that even if what you are going through doesn't show up on a test (and it probably won't), that you must continue to seek answers. Learn to live life for the little moments 
and stop striving to be perfect.  Find a whole food supplement 
such as Dr. Schulze Superfoods (best price is on ebay). Treat systemic candidiasis with garlic or ThreeLac or other things you find to treat it with. Observe the effects of what you do, eat, and drink, 
and learn to listen to your body.
Be self-disciplined and log what you do that makes you feel better and what makes you feel worse. Don't exercise if it makes you feel worse. Treat your adrenal glands - with an adrenal glandular, ginseng, or other adrenal boosters, if your research points in this direction (and the medical advice you have sought). I could tell you more, but this is a start. 

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Neurological Disorder » Chronic Fatigue Syndrome »

September 1, 2007

Another Day In Bed Story

September 01st 2007 Posted to Chronic Fatigue Syndrome

I wrote this post on my Fighting Fatigue blog a few weeks ago and I wanted to post it here so that hopefully people will understand better what this illness is like for us suffering.

You can also read the post at this link by clicking here.

I still am not feeling well today. The exhaustion is overwhelming. I had to go to the store for some things and as soon as I returned home, I fell asleep. So from 11:30 a.m. - 4:30 p.m. I slept. I hate missing out on my days and sleeping them away. My body doesn’t really give me any other choice though.

My son was feeling better, so he was at grandma’s house today. I haven’t been able to exercise because the exhaustion has been too bad. I keep having these hot flashes, then cold chills, and I haven’t decided yet if it is from some bug or virus, or just my hormones going crazy again. Sometimes it’s hard to tell the difference.

It’s amazing how some people react to Chronic Fatigue Syndrome. They think that we should just be able to “suck it up” and “push through being tired”. I hate the word tired. It doesn’t even begin to describe what I feel most of the time. Our disease is just like other chronic illnesses. We have to do what we have to do in order to survive.

My all time favorite thing that people say is, “You get exhausted because you THINK you will. If you just believe that you won’t get exhausted, then it won’t happen. You set yourself up for failure”. THIS IS SUCH BULL!! Would you tell a diabetic that they should not take their insulin and watch their diet because if they believe they can be well, they can? Or would you tell someone who has heart disease not to take their cholesterol medication, high blood pressure medication and watch their diet because if they just believe they can be well they don’t need any of these things? With Chronic Fatigue and Fibromyalgia patients, we need the rest. We have to watch our schedules. This is our insulin and high blood pressure medication.

I find that the older I am getting the more bad days I am having - and I am only 38. God, it scares me to think about what I am going to feel like at 50. I’ll probably feel like I am 70.

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Neurological Disorder » Chronic Fatigue Syndrome »

August 27, 2007

CFS Flare

August 27th 2007 Posted to Chronic Fatigue Syndrome

I am having a CFS flare today.  I didn't sleep well last night because I was worried about my son starting Kindergarten today and of course, as a mother to an only child, I spent a lot of that time crying.

 Now I feel like crap and my symptoms are acting up big time.  Warning to those out there with Chronic Fatigue Syndrome:  beware of any kind of stress at all.  It's just so damaging for us.

Fighting Fatigue

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Neurological Disorder » Chronic Fatigue Syndrome »

August 20, 2007

I do not have Chronic Fatigue Syndrome

August 20th 2007 Posted to Chronic Fatigue Syndrome

Went to the doctor today and he said I do not have chronic fatigue syndrome. He said my fatigue and lack of energy is most likely due to diabetes. Though based on his response, he seems to think CFS does not exist.

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Neurological Disorder » Chronic Fatigue Syndrome »

August 15, 2007

How Do I Know If I Have Chronic Fatigue Syndrome?

August 15th 2007 Posted to Chronic Fatigue Syndrome

Chronic Fatigue Syndrome is a very debilitating, chronic illness that has had physicians and patients alike confused for over 20 years. Although CFS sufferers are being taken more seriously now, thanks to major changes in awareness, there are still many doctors who believe that this illness doesn’t exist.

Someone with chronic fatigue is not just “tired”. Tired doesn’t even begin to describe what we feel. It is a total and complete exhaustion that leaves us helpless at times. Too exhausted to even take a shower, cook a meal, or play with our children.

Have you thought that maybe you possibly have CFS? There is a questionnaire on CFIDS.org that you can take to see if you fit the CFS criteria. After answering these questions, and if you fit many of the criteria, you need to be checked by a physician. Here is the link:

www.cfids.org/about-cfids/do-i-have-cfids.asp

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Neurological Disorder » Chronic Fatigue Syndrome »

August 14, 2007

Hi From Fighting Fatigue

August 14th 2007 Posted to Chronic Fatigue Syndrome

Hi! My name is Sandy and I have had Chronic Fatigue Syndrome for over 17 years. I just found out about this site today and I am excited to meet others who have Chronic Fatigue Syndrome. I also have a website where I talk about research, support and my daily struggles with this devestating illness. You can find me at www.fightingfatigue.org. I hope to make some new friends here!

You can also read about my struggle with PMDD here at my Fighting Fatigue website: www.fightingfatigue.org/?s=PMDD

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